CHAT WITH THE EXPERTS: Patient-Researchers: The Missing Link? Topic area: Engaging stakeholders (e.g., patients/care partners) as equal partners in developing and implementing rehabilitation research
Friday, November 1, 2024
12:15 PM – 12:45 PM
Location: Station 1: ROOM: EXPO Hall / Trinity Ballroom: Tower Lobby Level >>> DIRECTIONS: From ACRM Registration desk, face the elephants. Turn right at the elephants and proceed past the Gossip Bar into the Trinity Art Corridor. Turn left and follow the signs down the corridor, passing through the Rotunda and continuing to the end of the corridor. The Expo Hall is on the right at the end of the corridor.
Adjunct Professor and Senior Scientist Wake Forest University School of Medicine and Carolinas Rehabilitation Charlotte, North Carolina, United States
Patients as researchers is an important concept in the rehabilitation field and a movement toward person-centered, collaborative, participatory health care. What happens when the person with lived or living experience of the disease becomes the research “partner”, “colleague” or clinical researcher? Join us for a lively conversation on what it means to be a patient researcher, how patient researchers are openly using the lived or living experience of a disease, disability or other health challenge in conducting research within academia or in other contexts, and the challenges, opportunities and positive contributions of patient researchers to the improvement of the rehabilitation field and of research.
Learning Objectives:
Define what is meant by personal science
Identify emerging rehabilitation literature on personal science
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